{"id":2400,"date":"2021-02-23T15:01:01","date_gmt":"2021-02-23T20:01:01","guid":{"rendered":"https:\/\/www.pallium.ca\/story\/improving-the-patient-and-family-illness-experience\/"},"modified":"2024-10-03T09:39:56","modified_gmt":"2024-10-03T13:39:56","slug":"improving-the-patient-and-family-illness-experience","status":"publish","type":"story","link":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/","title":{"rendered":"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie"},"content":{"rendered":"[vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_row_inner column_margin=\u00a0\u00bbnone\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_position=\u00a0\u00bbdefault\u00a0\u00bb row_position_tablet=\u00a0\u00bbinherit\u00a0\u00bb row_position_phone=\u00a0\u00bbinherit\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb pointer_events=\u00a0\u00bball\u00a0\u00bb][vc_column_inner column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n
Pallium is highlighting fantastic examples of leadership among its network of LEAP facilitators to showcase how these palliative care clinicians and educators are improving the delivery of palliative care in their workplaces, regions, and across Canada. It is the passion and dedication of LEAP\u00a0 facilitators across Canada that is transforming the way we care for Canadians facing life-limiting illness, and their families.<\/em><\/h6>\n[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_row_inner column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_position=\u00a0\u00bbdefault\u00a0\u00bb row_position_tablet=\u00a0\u00bbinherit\u00a0\u00bb row_position_phone=\u00a0\u00bbinherit\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb pointer_events=\u00a0\u00bball\u00a0\u00bb][vc_column_inner column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb column_padding_type=\u00a0\u00bbdefault\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb offset=\u00a0\u00bbvc_col-lg-offset-2 vc_col-lg-8″]

Pourquoi personne ne m\u2019en a-t-il parl\u00e9 plus t\u00f4t?<\/p>\n<\/span><\/div><\/div>[divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]After being asked this question by patients with serious illnesses or their family members in nearly every home she visited, palliative care physician, Dr. Samantha Winemaker, began to think about new ways to address the massive gap in patient and family literacy around their health. Dr. Winemaker and her colleague, Dr. Hsien Seow, Canada Research Chair in Palliative Care, began to think of what patients and families needed to know early on in their illness journey, not just at end of life. This was the beginning of The Waiting Room Revolution<\/a> movement and podcast, which aims to activate and empower patients and families facing serious illness.<\/p>\n

Guiding patients and families from the beginning of a life-limiting diagnosis all the way to the end of life isn\u2019t an easy task for health care professionals. What\u2019s more, formal training does not address open, honest, and realistic communication with patients and families leaving many health care providers feeling uncertain how to share difficult information. Throughout an illness journey, patients and family members are often overwhelmed and unsure of what to expect next and they struggle to understand the meaning of the information they receive. Dr. Winemaker describes this, fittingly, as being \u2018in the dark\u2019.<\/p>\n

Patients do not get to choose their health care provider. Dr. Winemaker explains, \u201cUltimately patients and families rely on the lottery of the health care provider they end up with\u2026and that health care provider may or may not have taken Pallium\u2019s LEAP course or feel competent, comfortable, or skilled to shepherd someone from the beginning of a diagnosis to the end.\u201d As a result, Dr. Winemaker encounters many patients and families in the home with amplified symptoms due to fear and anxiety of not truly understanding what\u2019s happening to them.<\/p>\n

Dr. Winemaker describes some patients she meets as \u201ctravelling through illnesses for months or years really feeling like they are afloat.\u201d She\u2019ll ask patients their understanding of the illness, where they think they are in their illness, if their mind wanders to the future and wonders what\u2019s going to happen, and if they would like to speak openly and frankly about all these things. Dr. Winemaker says,[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][vc_row_inner column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_position=\u00a0\u00bbdefault\u00a0\u00bb row_position_tablet=\u00a0\u00bbinherit\u00a0\u00bb row_position_phone=\u00a0\u00bbinherit\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb pointer_events=\u00a0\u00bball\u00a0\u00bb][vc_column_inner column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb column_padding_type=\u00a0\u00bbdefault\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb offset=\u00a0\u00bbvc_col-lg-offset-2 vc_col-lg-8″]

Ils me regardent tous et me demandent si je plaisante, puis ils me posent une s\u00e9rie de questions du genre\u202f: \u201cComment \u00e7a, vous en savez plus? Pourquoi n\u2019ai-je pas \u00e9t\u00e9 invit\u00e9 \u00e0 participer \u00e0 cette conversation plus t\u00f4t?\u00a0\u00bb <\/p>\n<\/span><\/div><\/div>[divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]Dr. Winemaker and Dr. Seow frequently lamented over shared feelings of not moving the needle fast enough\u2014Dr. Seow was unsure how much of his research was changing the experience of patients with serious illness and their families and Dr. Winemaker was not sure if health care providers were improving their delivery of open, honest, realistic communication with those same patients and families. Both agreed that patients shouldn\u2019t be held at the mercy of a health care team\u2019s comfort or discomfort in providing information that isn\u2019t only positive. They began discussing the concept of leapfrogging over the health care system entirely and delivering public facing information on how to take control of the discussion about serious illness and disease directly to patients and families.<\/p>\n

The Waiting Room Revolution movement was born out of an undeniable call to action to ensure patients with serious illness and their families felt more in control and knowledgeable about their illness journeys. The movement is about unlocking the keys to a better illness experience\u2014empowering patients, families, and caregivers to go from unaware to informed, from unsure to confident, from overwhelmed to in control, from scared to hopeful.<\/p>\n

Over the course of their careers, Dr. Winemaker and Dr. Seow have met patients and families that did feel in control, confident, and prepared through their illness journeys and were able to help customize their care plans. Distilling and communicating what they had learned from those who were \u2018in the know\u2019 versus those \u2018in the dark\u2019 was to be a key feature of the messaging of the Waiting Room Revolution movement.<\/p>\n

One of the hallmark ways the movement is brought to life is through the Waiting Room Revolution podcast. Through interviews with caregivers, patients, health care providers, and experts, Dr. Winemaker and Dr. Seow explore lived experiences that can help to prepare those who may just be starting their own journey. Episodes cover topics such as coaching patients and families to get the information they need from their health care team. One enlightening moment came while interviewing a caregiver who was told by the care team that her father was going to have a feeding tube. The caregiver recalls being provided with all the information about the feeding tube itself but nothing about what the feeding tube meant in terms of her father\u2019s illness and its trajectory. Dr. Winemaker shares,[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][vc_row_inner column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_position=\u00a0\u00bbdefault\u00a0\u00bb row_position_tablet=\u00a0\u00bbinherit\u00a0\u00bb row_position_phone=\u00a0\u00bbinherit\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb pointer_events=\u00a0\u00bball\u00a0\u00bb][vc_column_inner column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb column_padding_type=\u00a0\u00bbdefault\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb offset=\u00a0\u00bbvc_col-lg-offset-2 vc_col-lg-8″]

L\u2019information ne suffit pas. La signification de l\u2019information est tout aussi importante que son contenu. En tant que fournisseurs de soins de sant\u00e9, nous devons combiner toutes ces informations pour nos patients et leur famille. <\/p>\n<\/span><\/div><\/div>[divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][\/vc_column_inner][\/vc_row_inner][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]Lorsqu\u2019on lui demande ce qui a \u00e9t\u00e9 l\u2019aspect le plus gratifiant du lancement de ce mouvement, la Dre Winemaker dit\u202f: \u00ab\u202fCette ressource concr\u00e8te existe d\u00e9sormais.\u202f\u00bb Apr\u00e8s avoir d\u00e9crit la joie de travailler avec son partenaire, le Dr Seow et d\u2019interviewer des personnes du monde entier, elle ajoute que le mouvement The Waiting Room Revolution a \u00e9t\u00e9 un exutoire cathartique et th\u00e9rapeutique pour elle qui a \u00e9t\u00e9 t\u00e9moin de traumatismes \u00e0 plusieurs reprises au cours de sa carri\u00e8re. La Dre Winemaker ajoute\u202f: \u00ab\u202fJ\u2019ai vraiment l\u2019impression que nous avons cr\u00e9\u00e9 un produit qui peut r\u00e9ellement changer le cours de la maladie et de l\u2019exp\u00e9rience de la maladie d\u2019une personne. C\u2019est passionnant.\u202f\u00bb[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb]

\n \n Learn more about the Waiting Room Revolution\"Learn\"Learn<\/span>\n <\/a>\n <\/div>[divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb custom_height_tablet=\u00a0\u00bb24px\u00a0\u00bb][vc_row_inner equal_height=\u00a0\u00bbyes\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_position=\u00a0\u00bbdefault\u00a0\u00bb row_position_tablet=\u00a0\u00bbinherit\u00a0\u00bb row_position_phone=\u00a0\u00bbinherit\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb pointer_events=\u00a0\u00bball\u00a0\u00bb class=\u00a0\u00bbmargin_bottom_0px\u00a0\u00bb][vc_column_inner top_padding_desktop=\u00a0\u00bb34″ constrain_group_100=\u00a0\u00bbyes\u00a0\u00bb bottom_padding_desktop=\u00a0\u00bb34″ left_padding_desktop=\u00a0\u00bb34″ constrain_group_101=\u00a0\u00bbyes\u00a0\u00bb right_padding_desktop=\u00a0\u00bb34″ top_padding_phone=\u00a0\u00bb18px\u00a0\u00bb constrain_group_104=\u00a0\u00bbyes\u00a0\u00bb bottom_padding_phone=\u00a0\u00bb18px\u00a0\u00bb left_padding_phone=\u00a0\u00bb18px\u00a0\u00bb constrain_group_105=\u00a0\u00bbyes\u00a0\u00bb right_padding_phone=\u00a0\u00bb18px\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbleft\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#ebf3f9″ background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbcustom\u00a0\u00bb top_left_border_radius=\u00a0\u00bb16px\u00a0\u00bb top_right_border_radius=\u00a0\u00bb16px\u00a0\u00bb bottom_right_border_radius=\u00a0\u00bb16px\u00a0\u00bb bottom_left_border_radius=\u00a0\u00bb16px\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb column_padding_type=\u00a0\u00bbadvanced\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb offset=\u00a0\u00bbvc_hidden-xs\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n
Samantha Winemaker is a palliative care physician and Pallium LEAP\u2122 facilitator. She is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University.<\/h6>\n

 <\/p>\n

Hsien Seow is the Canada Research Chair in Palliative Care and Health System Innovation and an Associate Professor in the Department of Oncology, McMaster University.<\/h6>\n

 <\/p>\n

Dr. Samantha Winemaker is part of Pallium\u2019s dedicated network of LEAP facilitators. From major cities to rural towns, Pallium\u2019s certified facilitators bring their experience, knowledge, and passion to deliver LEAP and advocate for better palliative care in their communities. Interested in learning how to implement a palliative care approach into your everyday practice from someone like Dr. Samantha Winemaker?<\/h6>\n[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb36px\u00a0\u00bb custom_height_phone=\u00a0\u00bb21px\u00a0\u00bb]
\n \n Learn more about LEAP\"Learn\"Learn<\/span>\n <\/a>\n <\/div>[\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"

\u00ab\u202fPourquoi personne ne m\u2019en a-t-il parl\u00e9 plus t\u00f4t?\u202f\u00bb\u202f Apr\u00e8s s\u2019\u00eatre fait poser cette question par des patients atteints de maladies graves ou par des membres de leur famille dans presque tous les foyers qu\u2019elle a visit\u00e9s, la m\u00e9decin sp\u00e9cialiste des soins palliatifs, la Dre Samantha Winemaker, a commenc\u00e9 \u00e0 r\u00e9fl\u00e9chir \u00e0 de nouveaux moyens de combler l\u2019\u00e9norme foss\u00e9 des connaissances des patients et des familles en mati\u00e8re sant\u00e9. <\/p>\n","protected":false},"featured_media":767,"parent":0,"template":"","meta":{"_acf_changed":false},"stories-category":[76],"class_list":{"0":"post-2400","1":"story","2":"type-story","3":"status-publish","4":"has-post-thumbnail","6":"stories-category-histoires-animateurs"},"acf":[],"yoast_head":"\nL\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada\" \/>\n<meta property=\"og:description\" content=\"\u00ab\u202fPourquoi personne ne m\u2019en a-t-il parl\u00e9 plus t\u00f4t?\u202f\u00bb\u202f Apr\u00e8s s\u2019\u00eatre fait poser cette question par des patients atteints de maladies graves ou par des membres de leur famille dans presque tous les foyers qu\u2019elle a visit\u00e9s, la m\u00e9decin sp\u00e9cialiste des soins palliatifs, la Dre Samantha Winemaker, a commenc\u00e9 \u00e0 r\u00e9fl\u00e9chir \u00e0 de nouveaux moyens de combler l\u2019\u00e9norme foss\u00e9 des connaissances des patients et des familles en mati\u00e8re sant\u00e9.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/\" \/>\n<meta property=\"og:site_name\" content=\"Pallium Canada\" \/>\n<meta property=\"article:modified_time\" content=\"2024-10-03T13:39:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.pallium.ca\/wp-content\/uploads\/2022\/02\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"2560\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/\",\"url\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/\",\"name\":\"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.pallium.ca\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg\",\"datePublished\":\"2021-02-23T20:01:01+00:00\",\"dateModified\":\"2024-10-03T13:39:56+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.pallium.ca\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg\",\"contentUrl\":\"https:\\\/\\\/www.pallium.ca\\\/wp-content\\\/uploads\\\/2022\\\/02\\\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg\",\"width\":1920,\"height\":2560},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/story\\\/improving-the-patient-and-family-illness-experience\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#website\",\"url\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/\",\"name\":\"Pallium Canada\",\"description\":\"Advancing Palliative Care\",\"publisher\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#organization\",\"name\":\"Pallium Canada\",\"url\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/www.pallium.ca\\\/wp-content\\\/uploads\\\/2024\\\/05\\\/Pallium-Logo.svg\",\"contentUrl\":\"https:\\\/\\\/www.pallium.ca\\\/wp-content\\\/uploads\\\/2024\\\/05\\\/Pallium-Logo.svg\",\"width\":1,\"height\":1,\"caption\":\"Pallium Canada\"},\"image\":{\"@id\":\"https:\\\/\\\/www.pallium.ca\\\/fr\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/","og_locale":"fr_FR","og_type":"article","og_title":"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada","og_description":"\u00ab\u202fPourquoi personne ne m\u2019en a-t-il parl\u00e9 plus t\u00f4t?\u202f\u00bb\u202f Apr\u00e8s s\u2019\u00eatre fait poser cette question par des patients atteints de maladies graves ou par des membres de leur famille dans presque tous les foyers qu\u2019elle a visit\u00e9s, la m\u00e9decin sp\u00e9cialiste des soins palliatifs, la Dre Samantha Winemaker, a commenc\u00e9 \u00e0 r\u00e9fl\u00e9chir \u00e0 de nouveaux moyens de combler l\u2019\u00e9norme foss\u00e9 des connaissances des patients et des familles en mati\u00e8re sant\u00e9.","og_url":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/","og_site_name":"Pallium Canada","article_modified_time":"2024-10-03T13:39:56+00:00","og_image":[{"width":1920,"height":2560,"url":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2022\/02\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/","url":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/","name":"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie - Pallium Canada","isPartOf":{"@id":"https:\/\/www.pallium.ca\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/#primaryimage"},"image":{"@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/#primaryimage"},"thumbnailUrl":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2022\/02\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg","datePublished":"2021-02-23T20:01:01+00:00","dateModified":"2024-10-03T13:39:56+00:00","breadcrumb":{"@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/#primaryimage","url":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2022\/02\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg","contentUrl":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2022\/02\/Dr.-Samantha-Winemaker-scaled-1-scaled.jpg","width":1920,"height":2560},{"@type":"BreadcrumbList","@id":"https:\/\/www.pallium.ca\/fr\/story\/improving-the-patient-and-family-illness-experience\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.pallium.ca\/fr\/"},{"@type":"ListItem","position":2,"name":"L\u2019am\u00e9lioration de l\u2019exp\u00e9rience des patients et des familles en mati\u00e8re de maladie"}]},{"@type":"WebSite","@id":"https:\/\/www.pallium.ca\/fr\/#website","url":"https:\/\/www.pallium.ca\/fr\/","name":"Pallium Canada","description":"Advancing Palliative Care","publisher":{"@id":"https:\/\/www.pallium.ca\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.pallium.ca\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/www.pallium.ca\/fr\/#organization","name":"Pallium Canada","url":"https:\/\/www.pallium.ca\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/www.pallium.ca\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2024\/05\/Pallium-Logo.svg","contentUrl":"https:\/\/www.pallium.ca\/wp-content\/uploads\/2024\/05\/Pallium-Logo.svg","width":1,"height":1,"caption":"Pallium Canada"},"image":{"@id":"https:\/\/www.pallium.ca\/fr\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/story\/2400","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/story"}],"about":[{"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/types\/story"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/media\/767"}],"wp:attachment":[{"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/media?parent=2400"}],"wp:term":[{"taxonomy":"stories-category","embeddable":true,"href":"https:\/\/www.pallium.ca\/fr\/wp-json\/wp\/v2\/stories-category?post=2400"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}